Sunday, November 21, 2010

Sunday, November 21, 2010

Dear Family and Friends,

Joe and Ginny as well as their entire extended family all over the country wish you all a very Happy Thanksgiving. Know we have all of you collectively in our prayers of gratitude as we know that Joe still being with us is a gift and we are so deeply appreciatively for all your prayers and support. Below is a message from Ginny she asked me to post. Love and Blessings to all, Lisa

Everything is getting back to normal. Joe was released to return to his various therapies late last week so this week there have been evaluations of his current condition. Lots of good news. No real set-backs anywhere. The only change was a some decline in his left hand grip strength. His left side has been weaker, all along. But his left leg is caught up totally, left hand lingers but is fully functional, just not as strong as the right. This is actually true for most right handed folks in any case but overall strengthening of both hands and all muscles is the goal.

A few evenings ago we jogged two miles. We were really excited. Not sure we will be able to do the 5K on Thanksgiving morning but we are hopeful. If the weather is bad though, we will need to skip it in any case. Poor conditions would make it to dangerous from a falling perspective.

The MRSA infection is nearly licked. If things continue to go well, the antibiotics will be DC'd (discontinued) tomorrow, the day before Stephen's birthday. We are very excited to be done with the picc tube/IV medicine. Having said, it actually has been easy plus now we have another new skill. Both of us hope to be a good resource for others who might have similar situations.

Shortly decisions will be made about Joe's right eye. It is clear this eye is the source of problems and treatment should no longer be delayed. So we are insisting on it. We see yet another ophthalmologist on Tuesday to get his opinion on the best course of actions.

Cognitively I see improvements all of the time. And even more often Joe knows and understands his struggles. So my normal comment is to "out smart" his problem. If you know something is present "intellectually", then keep looking for it until it comes into your visual field. From a recovery perspective, this is really important for managing daily life....understanding and problem solving. Joe's speech therapist is working so hard to help him with these concepts and I see great results. Some frustration, but great results. Better to know your problems and work through them, then not even realize there is a problem.

Thanksgiving, well let me say, it has a whole new meaning this year.

On Friday we fly to Ohio to be with family and friends for the weekend. Joe and Stephen will attend the big game (up North at least)---OSU verus Michigan with our best man John. Paul and Lisa we be there too. I will be shopping with my Mom and sisters and watching the game at home on Saturday. Keith will hold down the fort and eat the Thanksgiving leftovers as he starts finals on Thanksgiving Monday.

Wishing all a wonderful Thanksgiving.

Love, Ginny

Tuesday, November 2, 2010

Nov. 2, 2010 Ginny via Lisa

Dear Family and Friends,

I spoke with Ginny today and Joe is doing great. His infectious disease doctor in Huntsville, Dr. Spera (sp?), who also treated him after the incident, is monitoring Joe very closely and reports that his labs are looking quite good. Joe is fatigued still, which the doctor said is to be expected given the infection, the incident itself and all the surgeries, but he is feeling pretty good overall. A nurse comes in on Monday and Friday to change the dressing and take blood. He's getting on Ginny to train for the turkey trot but Ginny wants to wait until they both can train together. I neglected to post the email Ginny sent at end of last week about Joe's progress--so sorry. Here it is and love to all, Lisa


Wow. Joe is so much better with new medicines. I am so relieved but watching like a hawk for swelling or any other indications that the new, much less offensive, antibiotics are not working as well as the original one that completely tore him up. Joe is so tired/fatigued. This is likely due to both the infection and all of the anti-nausea medicines being used. The latter I am trying to wean off. But so cautious. I sure don't want to set his system into another tailspin. Other than the first week home after Atlanta, this has been the worst. But it to is behind us and there is no reason to think otherwise. Joe sleeping so I am sleeping....and eating. Jackie and Phil will attest to that!! They left just this morning thinking we are again back to forward progress.

So all is good. Keith is once again back to errand boy, getting a few groceries tonight. If this week continues to go well, hopefully therapy can be resumed soon too. Several doctors next week. Tuesday Infectious Disease. I feel certain the infection is being killed but it will be good to know for certain. Though my hands are still really dry, no cracks or pain. The cream proscribed by my doctor really worked great. And next time I will get help before it gets so bad. I am learning. Latex allergy I guess. The glove liners provided by Theresa and Jackie, then the non-latex glues seem to be the perfect combination. You should see our house. Soap and paper towels everywhere. Along with trash cans overflowing and laundry running constantly. Trying not to reuse anything Joe touches just to be sure. No sign of infection for me or boys. Not even worried anymore about that but still really careful.

Work on hold....again. There is no way I am leaving Joe for more than an hour at least until we see ID on Tuesday. The infection came on so fast the last time, it getting significantly worse over the four hours I was at work. Not letting that happen again until it is gone from his system.

Funny that he asked me to take him to his lab yesterday in order for him to do a MRSA test on himself using stuff he has in his lab. He wants to see his results and compare to ID's results. Incredible. Struggles to not spill his food while eating but still can do lab work. I just shake my head in wonder and amazement...like so often before.

Reminded again, to always be thankful for so many blessings. Hugs, Ginny

Saturday, October 23, 2010

Oct. 23, 2010

Dear Family and Friends,

Well this past week just stunk, but today Joe turned the corner--we think--we hope!

Joe has been home but has not been doing well. Sick to his stomach, not keeping ANY food down, not out of his robe or out of bed much since Monday until today (Thank the Lord!). His nausea was attributed to Vancomycin, the antibiotic prescribed for the MRSA infection in his brain, that he had to take twice a day intraveneously. Though he had be prescribed an anti-nausea drug, it didn't do the trick against such a large dose of Vancomycin. It was hard to tell whether Joe's fatigue was due to all the nausea and/or the infection he was fighting. That MRSA is nasty stuff!

Thursday night was the last time for that drug, and yesterday Dr. Spera switched him to Cubicin. One great aspect of Cubicin is that it is only administered once a day (5cc's) via a syringe put directly into Joe's picc line, so much less hassle! Further, it doesn't seem to nauseate him as much, and he was able to eat jello and keep it down yesterday. I think he was going to try small bites of peanut butter and jelly today and try to go for a short walk outside.

Today when I talked to Joe on the phone, and he seemed much more upbeat. We are cautiously optimistic that we're finally lickin' this thing!

Take care and love your family and friends!

Blessings, Lisa

Friday, October 15, 2010

Oct. 15, 2010 8:20 Pacific Time

Dear Family and Friends,

Unfortunately Joe has MRSA. I give the Mayo Clinic Definition below:

Methicillin-resistant Staphylococcus aureus (MRSA) infection is caused by a strain of staph bacteria that's become resistant to the antibiotics commonly used to treat ordinary staph infections.

Most MRSA infections occur in people who have been in hospitals or other health care settings, such as nursing homes and dialysis centers. When it occurs in these settings, it's known as health care-associated MRSA (HA-MRSA). HA-MRSA infections typically are associated with invasive procedures or devices, such as surgeries, intravenous tubing or artificial joints.

However, as Ginny's sister Theresa described so aptly:

"This is scary because of the location of the infection, but he's on antibiodics and he has Infectious Disease specialists looking after him. He is not immunocompromised so there is no need to think that he won't get through this. He needs prayers, but he's in good hands."

Drain line is to be removed today and Joe may be released today or tomorrow. He left a message on my cell and he sounded good. Relieved me a great deal. He is bummed about the MRSA but is taking it in stride, reporting his condition in a very rational, microbiologist way.

Enough said for now. Thanks for your continuing prayers.

Lisa

Thursday, October 14, 2010

Oct. 14, 2010

Dear Family and Friends,

I've copied below and email sent to me from Dad Leahy as communicated to him via Ginny. This gives a bit of the back story leading up to Joe's surgery. Update today is that Joe's drain line to the brain site where they removed the plate will be removed today. The Picc line was inserted. He didn't sleep well last night and had considerable stomach distress yesterday but doing better today. I know they are working on the dosage of antibiotic to give him to knock out this infection without making him sick to his stomach. Poor Joe, not a way to celebrate his upcoming birthday! Again, thanks for your prayers.

Lisa

10/10 Noticed some minor swelling on right eye lid. By Monday, increased concern due to significant swelling and redness which had spread to right forehead and left eyelid and brow. Go to ER at Huntsville on Monday night and on to UAB by Hemsi (ambulance) shortly after midnight.
10/12 When seen by Dr Fisher, he determined plate had to be removed due to infection and by 5:30 PM it was done.
Joe has continued to be stable though he is experiencing some stomach distress, likely as a result of the high dosages of antibiotics. So after 8 months of miraculous recovery, we experience our first set back. Joe knows the microbiology of infections so he is a great source of information and comfort.
10/13 Friends from Madison church stayed with Ginny over night. Joe's mom and Dad arrive. At this time basic path forward, aside from current recovery in hospital is to put in a pic line so Joe can continue to get antibiotics when home thru this line. This may go on several weeks. Dr Fisher is planning on putting in a new plate but not for at least 6 months.

Wednesday, October 13, 2010

Oct. 13, 2010 Lisa

Dear Family and Friends,

Some of you may not know that Joe had to have surgery yesterday to remove the titanium plate that had just been inserted a couple of weeks ago. He developed an infection in the brain so it had to come out. He's doing well and Mom and Dad Leahy arrived there today. Thanks to Cindy Taglowski (sp?) and Illiana (?), friends from Madison-Huntsville for being there with Ginny and even staying overnight. He's on mega doses of an antibiotic being administered through a picc line and MaryAnne the caseworker is making arrangements for someone to come into home and administer the antibiotic but think Ginny might be trained on it too. Joe was in ICU this morning but now in regular room. Not sure how long he will be staying in the hospital but I will post more as information becomes available to me. Mark and I just arrived at Lake Tahoe today for the Western History Association conference so I'm getting bits and pieces from texts and phone calls but asked Dad to email more info tonight.

Please, as always, keep Joe and family in your prayers. We are frustrated by this setback but grateful Joe is doing so well. We don't know the origin of the infection but could be his bad eye--just not sure. He won't be able to have another surgery to put the plate back in for several months as brain needs to heal. What makes me smile is that Joe was most concerned about baing able to still make the Ohio State-Michigan game with Stephen in November. Hopefully that can still happen.

Take care and thanks for all your prayers.

Lisa

Sunday, October 3, 2010

Oct. 3 11 pm. from Joe's Dad tPhil Leahy hrough Lisa

Dear Family and Friends,

Talked to Joe and Gin. They went to mass tonight, all impressed by Joe's surgery results. They had lasagna brought to them for supper--another one of those stories with all the connections. Mark Roberts brought over the lasagna that he made; he is a Huntsville police officer who was one of the first on the scene at UAH and saw Joe at that time. Mark's wife, Mary, is Joe's occupational therapist, and so it goes. Mark said he could not believe what he saw in Joe. Thought it would have been million to one that he might survive. "Truly a miracle" he said. Love, Dad/Phil

Yes, we have witnessed a miracle. Good night everyone. Love, Lisa

Saturday, October 2, 2010

Lisa Oct. 2, 2010

Dear Family and Friends,

Joe just called me to say he is back home and doing great! From a picture sent my Ginny via cell phone, the indentation caused by the injury and the subsequent debridement surgery is now smoothed over. He is taking it easy and staying ahead of the pain with meds. He will be going back to UAB on Friday to have the sutures and staples removed.

Thanks to all of you for all your prayers. Thanks to Dr. Fisher for doing such a great job. And thank you God for getting Joe through one more surgery.

Happy Feast of the Guardian Angels.

Love to all,

Lisa

Wednesday, September 29, 2010

Surgery Thursday, September 30 Joe via Lisa

We thought this surgery wouldn't occur for awhile. Mom and Dad Leahy just returned to Ohio recently from the first surgery and are sorry to not be there. Please keep Joe and his medical team in your prayers. Love to all, Lisa


Everyone,

I'm going to have another surgery at University of Alabama-Birmingham tomorrow at 10 am or so. They are implanting a titanium plate in my forehead to cover the "dent" in my skull. I'm sure everything will be fine, but please keep me in your prayers. Gin and boys are taking great care care of me.

Love to all,

Joe

Sunday, September 19, 2010

Post from Joe and Gin via Lisa--Sunday, Sept. 19, 2:11 Central

This is copy and pasted directly from email from Joe and Ginny with direction to post. I apologize for my earlier mistake in thinking Dr. Long did the surgery--Dr. Louis did this surgery yet Dr. Long will be doing a future surgery. It is all so confusing. Thank you so much for your prayers, cards and well wishes. The entire family is very grateful.

Blessings,

Lisa

So many people have asked for details of the surgery. I checked with Joe and he is fine with us posting the details of last Thursday's surgery. So here goes--

Slice of history--

We had told about a month ago that UAB physicians would likely be able to do several procedures at the same time, saving Joe from a "one thing at a time" situation with multiple surgeries and recoveries. However, as the doctors more closely examined his CT scans (no MRI can be done due to pins in his cheek), the recommendation was made to go back to the "one thing at a time" approach. Most of this is because they don't know what they will find until they are doing the work and the potential for swelling might change the approach.

So on Thursday, Dr. Louis', goal was to repair any holes in the upper right eye socket and determine, when in surgery, what other holes are present and either repair them or determine a strategy for next procedure. The upper right eye socket had to be repaired to in order to do anything with the right eye ball, which has sunken into the socket due to all the fractures.

The entry point was through an incision in the crease in the right eye lid. The incision is the length of the lid. From there Dr. Louis was able to determine with scopes, I suppose, the upper orbital (socket) defect (hole) and thereby determine the bone graft necessary to cover the hole. The graft was taken from Joe's left skull, obtained from an incision cut zig zag, deep in the hair line, starting above the left ear and going up. It is a long incision, closed with about 15 staples. Somehow the bone graft was obtained and implanted then over the orbital hole which was determined to be the somewhere between the size of a quarter and 50cent piece.

The surgery was a complete success. The hole was repaired. Dr. Louis also determined that the rest of the right eye socket is healing extremely well, including the bottom so no additional bone grafting or plastic surgery should be needed.

Dr. Fisher, a neurosurgeon, met with us the day before the surgery. He was available for Dr. Louis if any 'brain" issues came into play. When the surgery went over our expected two hours, and lasted four hours instead, we felt certain that issues had arisen and Dr. Fisher had to be called in. Much to our relief, when Dr. Louis spoke to us post-surgery, he said everything went great and there was no need for Dr. Fisher to join in. I must have had a look of alarm, or something, when asking about the duration, his comment was something like, "Well, we like to take things slowly". That I do appreciate!! When he explain the size of the hole, length of grafting incision, it all made sense. And we were sure relieved Dr. Fisher's expertise was not needed. Even minor movements of brain tissue is a scary thing. I did not want to give back any of Joe's recovery thus far. There was no brain herniation nor any cerebral spinal fluid leakage present so that was fabulous news too.

The next step will be repairing the defect (dent) in Joe's right forehead. (Unknown to us previously, Dr. Fisher showed us that the skull fracture extended a long way across the skull, like maybe 8 or so inches. This fracture has healed but is somewhat misaligned.) Dr. Fisher recommends that we go with a relatively small implant and simply repair the dent rather then go with a much larger one that would repair the misalignment given that Joe's hair is thick and completely hides the ridge. This seemed very practical and reasonable. We hope to have this surgery done in the next month or so.

Surgery was Thursday, finishing at 5:45 pm. Friday morning, at 7:30am, Joe was conversing, starving to death and asked Dr. Fisher when he could be released, have normal food, and most importantly if he could attend Stephen's cross country meet Saturday morning. Dr. Louis was surely willing to keep Joe in the hospital but Joe really wanted to leave, felt well enough and I knew I had Jackie and Phil to help with any issues and concerns. By noon, after both a wonderful breakfast and lunch, Joe was ready to go. It was a done deal.

The cross country meet was great. Joe is tired but we still made 5:30 Mass and saw Fr. Phil. Some things just seem right. Joe has some serious swelling on his right eye lid. (Think the first Rockie movie--ouch). The left skull incision looks great and is healing. No hair was shaved so it is like searching in a forest for the staples. Incredible what now can be done.

Today we are in resting mode. It is about 95 degrees here so a short walk this morning was plenty. Joe is helping Stephen with a genealogy project now so more normal is good. There is still a long road, but little things each day brighten my spirits. The boys, the company of Phil and Jackie, the support of my folks, our siblings, the kind words, friendly smiles, and prayers of so many who are on this journey with us. Words can not express the depth of our appreciation.

Joe and Ginny